Sunday, February 24, 2013

Recap



My endocrinologist appointment went very well last week.  I went armed with information for her to delve into and documentation of all my latest experiments for her to dissect.  My doctor was very happy with my lab work, my weight loss and the hard work that I’ve been putting into managing my diabetes.  In fact she was quite impressed with all of the extra leg work I’ve been doing with crunching the number and self-experiments I’ve been putting myself through.  She loved the ways that I’ve been trying to combat my dawn phenomenon and commended me on figuring out such a good system.  It feels good for the hard work to finally be paying off.  I’ll be heading back to see her in 3 months and it is my goal between now and then to reduce my A1c further, 6.7% down to 6.4%.  

I took advantage of the time I had with my endo and picked her brain about potential career paths.  For those of you that don’t know, I originally started college as a health science major with the intention of becoming a CDE (certified diabetes educator).  In case it isn’t blatantly obvious, I have a strong passion for diabetes education, nutrition and overall health and wellbeing.  Talking to her has led me to look into a few career paths that I had briefly thought about but never truly considered as options.  Needless to say, I have some decisions to make and am hoping that sometime soon I’ll be able to reveal a new plan about my career future to my friends and family.  I have always felt that this disease was part of my life for a reason and if I can help others through what I’ve learned, that’s what I’ll do.    

My blood sugars have been getting better over the past 2 weeks.  I was able to cut down my long acting insulin by 1.5 units this week, which is great!  Any reduction, no matter how small is a step in the right direction.  However, I have felt like I’ve been hitting more veins lately and my bruises are slowly taking over my injection areas.  Yesterday I invested in Arnica gel, which is supposed to help heal bruises faster.  Other than the decrease in insulin, I’ve made no real changes.  I am happy to report that I have been off my insulin pump for over a month and a half and cannot see going back to it in the near future.  I’m still enjoying my pump vacation and am looking forward to the summer months where I’ll finally be able to fully enjoy floats on the river, bathing suits and dresses without worrying about my pump!  Bring on the warm weather!

Besides my great appointment, I’ve been working on a guest blog post for a fellow blogger who also has T1D.  Look for that soon!  It will be about what diabetes has meant to me at different points throughout my life.  It is funny how having diabetes meant something different to me in grade school, to college, to married and working life.  I won’t go into too much detail, that way I won’t ruin the coming post for you guys.
As always, thanks for reading!
~D

Tuesday, February 12, 2013

The Mad Scientist - Being My Own Experiment

I intended on getting a post up a few days ago, but sometimes life gets in the way!  Better late than never!


Knowledge is the key to everything.  Obtaining knowledge comes at a price sometimes, for me the price was no sleep and no food.  I spent about 20 hours fasting in order to understand how and when my body was releasing glycogen from my liver and muscles and if my basal insulin dosages were correct. 
Here are my fasting basal testing blood sugar results showing the dawn phenomenon (which I will abbreviate as DP):

7am-117mg/dl accompanied by my basal dosage of 8units Levemir
8am-145mg/dl
9am-188mg/dl
10am-198mg/dl
11am-179mg/dl
12pm-174mg/dl
1pm-141mg/dl
3pm-138mg/dl accompanied by basal dosage of 8units Levemir
4pm-126mg/dl

Just to remind you these numbers are showing an upward trend WITHOUT me consuming anything besides water.  For anyone who is unfamiliar with diabetes, this is the DP and let’s be honest, to most diabetics it is a HUGE pain in the butt.  It is unpredictable, frustrating and at times it feels that it is uncontrollable. 

Each person, diabetic or not experiences the DP.  In the morning, anywhere between 3am and 8am our bodies are preparing for our day, releasing a plethora of hormones such as cortisol, glucagon and epinephrine which causes our liver to release the culprit…GLUCOSE!  What is so interesting about this is that these circulating hormones actually cause less sensitivity to insulin.  Therefore those of us injecting or pumping insulin have to increase our dosages anywhere from 20%-50% to fight against this surge!  Non-diabetics are able to combat this since their system of “checks and balances” is still in place, meaning their body recognizes any slight rise and secretes insulin while those of us with diabetes have to pinpoint the time that our body typically “dumps” this glucose and try to have the upper hand via low carb breakfasts, more insulin or adding Symlin (injection) which is to replace the hormone Amylin that T1D’s also do not produce.

After doing my basal testing and reviewing my previous glucose logs, it was evident that each day my blood sugar was climbing anywhere from 60 to 85 points each morning even with a NO carb breakfast, peaking between 10am and 11am. 

My first experiment with this new information went a little like this (and for those diabetics reading this, you may think I’m nuts):
1) Take morning blood sugar reading and add 75 points, which was a typical point increase I was experiencing.  Gives me a new number to bolus to.
2) Subtract 120 (target blood sugar) from new number.
3) Divide by 45 (this is my correction factor)
4) Add X units to morning bolus.
EX:  1) morning reading 100 + 75 = 175
       2)  175-120=55
       3)  55/45=1.22
       4)   1.22=number of units to add to morning bolus (in hopes of combating DP)

I tried experiment 1 for a few days and found for me that it only worked well IF I was combining both rapid acting insulin and Regular insulin that has a slower peak. 
Time for experiment number 2:  Reintroduction of Symlin aka make me wanna puke medicine
I have to give credit to a fellow T1D, Jason, who had written a whole post called, A Practical Symlin Guide for Type 1 Diabetics - Part 3: Advanced Techniques, Train Wrecks & Disasters, and High Protein/Lo-Carb Diets.  He suggested combating the DP by injecting Symlin early in the morning to keep the dump of glucose from the liver.  

Fast forward to this morning, blood sugar of 114, I injected the Symlin first thing when I woke up, 30 minutes later I took my insulin, but decreased it by about 2 units, ate my no carb breakfast about 15 minutes after that and drum roll please, post breakfast blood sugar was 144.  An increase of 30mg/dl (I’m aiming for no more than 20mg/dl increase or decrease), that sure beats an increase of 75 or 80mg/dl increase I was having!
I plan on furthering this experiment, especially considering that I only took 15mcg of Symlin which is the bare minimum and you must build up your dosage on this medication.  

Moving on from my experiments, I’m excited to announce that after months of hard work my A1c is finally below 7%.  For years now I’ve been bouncing between 7%-7.3%.  My triglycerides have lowered significantly and my good cholesterol is way above the target at 74.  Low-carb, higher fat, no sugar, more exercise has helped me to accomplish this.  I gave up fruit January 1st, I had already given up all grains 90% of the time, but went all in also on January 1st.  My meals consist of fat, protein, veggies and some people would be scared to learn that my daily intake of fat is about 50% of my daily calories!  Your body needs fat people, what it doesn’t need is a ton of glucose which comes from fruit and grains!  

Do you think that what I’m doing is following the traditional path of diabetes care?  No, it’s not.  I previously had two doctors and three nutritionists who shut me down every time I brought up doing anything low-carb or disconnecting from my insulin pump and “back tracking” as they said to injections.  They insisted I could eat a diet that consisted of 60% carbohydrates and just as a refresher, carbs turn to glucose, which I cannot metabolize correctly.  Does that sound like a good treatment plan for someone with diabetes? 
What I hope that people can take away from this post is that YOU are your best health advocate.  Realize that you are in control of your health!  Don’t be afraid to change doctors until you find the best fit for YOU!  Do your own research; seek second, third and fourth opinions when it comes to your health.  Be in control. Read, read and read some more, take notes, talk to others with your condition because they may have stumbled across something you’ve never heard of!  Keep the lines of communication open with your physician, because you may teach them something and they may get on board with your plan, like my MD is now.  

Well guys, thanks for reading this week!  Hopefully I’ll be posting more positive results as time progresses.
God Bless,
~D





Sunday, February 3, 2013

A Month Already?

4 weeks without my insulin pump!  I can hardly believe it!  While I am still thrilled to not be attached to anything, I am still frustrated that I am working out the kinks of MDI's.  I have not found anything to work 100%, and as I've realized over the past 17 years, nothing ever is 100% a solution for this disease.  
This coming week will most likely be the most challenging, starting tonight actually.  I will be doing a basal test.  Basal insulin is my long acting insulin that I have been taking twice a day, to keep my sugar at an even keel.  A basal test requires fasting and last time I checked no person likes fasting.  Dinner tonight will be my last meal until tomorrow night.  I will continue to take my long acting insulin and will have to check my blood sugar every 2 hours to try to determine any type of pattern that is occurring. 
The biggest thing I am hoping to accomplish from this is to determine when my "dawn phenomenon" is starting to occur and that lovely hormone, cortisol, is destroying my blood sugar. This test will also help me determine if my basal insulin dosages are even close to correct.  However, if my blood sugar drops during this time period, it's abort mission and I will have to start all over another day (yuck).
This week I will unfortunately be eliminating my delicious Starbucks coffee, which I indulge in each morning straight from our Keurig brewer.  Caffeine is another substance that changes blood sugar, so I am doing my best to eliminate any possible offenders.
Besides my basal testing, I am considering a few other guinea pig experiments on myself.  One of which will include Symlin, a medication to help with my stomach emptying, satiety and post meal blood glucose spikes, because on top of not producing insulin, I also lack the ability to produce amlyin.  When your body destroys the beta cells in your pancreas all kinds of fun things happen!! NOT!  I have tried Symlin before, when I was on the insulin pump and I never really stuck with it.  Partially due to the fact that for the first month, you practically want to throw up for 6 hours out of the day and it takes all my energy to move from the couch.  Joy!  It seems if I can get over that, one day pregnancy morning sickness shouldn't phase me right?!?!  However, if I can get past the weeks of adjustment and past the puke phase, this stuff might just work.  
For those of you out there keeping track this will increase my daily number of injections...what's another 3 needle jabs when you're already doing 6-9?  Yes, this year for Halloween I will appropriately dress up as a pincushion! 
Well, thanks for dropping by and keeping up with my crazy rollercoaster! 
Update soon,
D